Sunny Days Children's Fund

Helping to bring sunshine into the lives of needy children.
Charity Registration Number: 1114784

Example Grants

Below is a selection of grants we have been able to make due to the wonderful help of our donors.

Ashley - dob 24/07/1996

Ashley has a lot of health needs and he has been diagnosed with Congenital Chromosomal Abnormality, Learning difficulties and Global Development Delay.
After a request from Specialist Children's Services we were happy to provide Ashley with a laptop Computer to help with his school work.
As Ashley is from a single parent family we also provided funding for his new school uniform.

Chloe dob - 19/08/1994

Chloe was born with an unexplained moderate learning difficulty and a very mild physical disability. When she was 9 however she suddenly developed severe Childhood Generalised Primary Dystonia. Within 6 months she had such severe painful muscle spasms in her legs that she lost her mobility and within 9 months the spasms in her trunk were so strong that they constantly threw her backwards so she was unable to even sit up.
When Chloe was 13 she had Deep Brain Stimulation and within 3 months of having this implant she was sitting comfortable in a wheelchair again.
We agreed to a request for an iPad which could be attached to her wheelchair and allow Chloe her independence with her music which other 17 year olds take for granted and with the help of other apps to aid her education.

Robbie - 14/02/05

Robbie suffers with childhood onset dystonia. Robbie first showed signs of the condition just before his 4th birthday, and progressively has gone downhill from this time, to the extent he now uses a wheelchair 95% of the time, apart from the mobility issues in his legs, he also has extreme gross motor skills problems in his arms and back.
Whilst the condition is not curable Robbie is currently awaiting confirmation of a bran implant (DBS) which should help to improve his mobility issues.
We received a request for funding for an iPad, which has many apps that would assist Robbie with his school work, as he has very limited movement and struggles to control a PC mouse. We were pleased to supply the funding for Robbie.

Ryan - dob 14/04/2005

Ryan has Autism and has not had a family holiday for some time. We were therefore happy to send him and his family for a weeks break at our Holiday Home.

Shannon dob - 22/11/1995

Christian has been diagnosed with Autistic Spectrum Disorder and after receiving a request from his social worker we have agreed to send Christian and his parents to our Holiday Home.
Christian loves to plan towards his journeys by investigating the internet and writing his journeys down, his social worker also believes the holiday will help him to develop his social skills and self-esteem.

Piers - dob 3/6/2003

Piers has downs syndrome and Perthes disease (a disease of the hip). Piers loves to be outdoors but cannot ride a conventional bike because the Perthes disease affects his mobility. We were happy to help with funding for a specially adapted trike, which enables him to remain mobile on his bad days.

Habib - 24/06/1995

Habib has a severe form of Limb Girdle  Muscular Dystrophy a progressive muscle wasting condition that is life limiting. Habib had surgery in 2009 to straighten his spine. Unfortunately he misses a lot of school due to his condition, so we agreed to purchase a laptop to enable him to keep up with his school work

Daniel - dob 08/08/2003

Daniel has a severe heart defect and has had two major surgeries on bypass to give him a ‘fontan circulation’. Since he has only one ventricle in his heart his blood circulation now goes around his body and through his lungs. He has been put on warfarin for life (to thin his blood) so it can glide past the scar tissue.
When Daniel becomes unwell this is usually due to a warfarin imbalance.
We agreed to help fund a Coagucheck XS Systemkit which will enable his parents to check the levels of warfarin and pick up on any problems early.

Abigail dob 05/06/2003

Abigail has been diagnosed with chromosome abnormality 2, feet abnormalities (Forefoot Adductus and locked ankles) causing problems with her balance and mobility, Factor 5 Leiden Clotting Deficiency (blood has increased tendency to clot), reflux nephropathy (kidney condition causing urine to go back to the bladder instead of through the kidneys) and learning difficulties. Abigail is a wheelchair user.
The family home is being adapted to meet her needs and she will have a ground floor bedroom and bathroom. Abigail’s mother sleeps on Abigail’s floor to ensure she is safe at night.
We have agreed with her social worker and were happy to provide a visual monitor so that her parents are able to supervise Abigail’s safety when in their own room.

Christian - dob 03/10/1995

Christian has been diagnosed with Autistic Spectrum Disorder and after receiving a request from his social worker we have agreed to send Christian and his parents to our Holiday Home.
Christian loves to plan towards his journeys by investigating the internet and writing his journeys down, his social worker also believes the holiday will help him to develop his social skills and self-esteem.

Gabriella - dob 10/03/2008

Gabriella has a diagnosis of Gastroschisis and short gut syndrome. She has complex medical needs and has had 92% of her bowel removed. Due to her condition Gabriella suffers with constant diarrhoea and she requires changing between 5 to 8 times a night, including full change of bed clothes and bedding. Gabriella’s parents are under a lot of financial strain to maintain the volume of continence supplies and her social worker has requested a grant for specialist all in one vests and a Hammond Hickman Line wet/dry suit to enable her parents to take her swimming. We were pleased to supply the funding for these items.

Mohammed - dob 07/04/2008

Mohammed has SCID (severe combined immunodeficiency disease).He was admitted to hospital 19.02.11 as a planned admission but his expected discharge date is not known. We were approached by the family social worker to supply a grant for hospital travel costs we were pleased to help with this grant.

Dean - dob 26/03/1994

Dean has a diagnosis of Worster Drought Syndrome. This is a type of cerebral palsy which predominantly affects the control of the muscles which move the lips, tongue and palate, pharynx, oesophagus and vocal cords. Dean is unable to speak at all.
Now that Dean is getting older he wants to become increasingly independent . We were pleased to fund a communication aid that will enable Dean to have his independence.

Brodie - dob 04/09/01

Brodie has complex medical needs related to her gut and endocrine system and requires specialized medical care and future surgery. Brodie has been admitted to hospital and her expected discharge date is not known. We were pleased to supply a hospital travel grant to her family.

Norman - dob 16/09/1994

Norman has a diagnosis of severe epilepsy in the form of Lennox Gastaut Syndrome and autism. Norman is home educated due to his complex seizure disorder, recurrent poor health and sleep disorder which made attending school very difficult. We were pleased to supply a touch screen computer for Norman to help with his education.

Connor - dob 03/09/1995

Connor has a diagnosis of Autism and presents with challenging behaviour which can be unpredictable at times therefore requires carer’s to be vigilant and alert to this. School holidays can be particularly difficult to manage for his parents as Connor is restricted to the home as they find it difficult to take him out due to the risks he presents to himself and others. We have therefore agreed to fund a two week play scheme for Connor in the school holidays.

Dylan - dob 19/01/1998

Dylan has autism which affects his verbal communication. He has no sense of danger and experiences bowel problems. Due to Dylan’s condition, the family’s current housing area environment is stressful in terms of Dylan and his 3 younger siblings and his parents being verbally targeted by a neighbour. The family are actively pursuing alternative accommodation as they are subjected to verbal abuse on a regular basis making it impossible to spend time in the garden. We have agreed with his social worker that Dylan would greatly benefit from a holiday with his family away from this situation. We were pleased to supply a holiday grant for Dylan and his family.

Erin - dob 22/05/2008

Erin has Down syndrome and hearing impairment. Erin is just beginning to walk and her parents want to convert their garden to give Erin a safe & secure place to play. We have agreed to help with funding towards a ‘safe surface’ to be installed in their garden.

George - dob 14/12/2009

George has severe reflux and is under investigation for Gastro. He has had several admissions to hospital since birth as his condition is very rare and they are still trying to find out the best possible long term care/treatment for him. George’s family are under a great amount of stress both personally and financially, we have therefore agreed after a request from his social worker to provide a grant for travel costs.

Tyler - dob 11/06/1997

Tyler has a diagnosis of severe congenital Myotonic Dystrophy he has severe learning difficulties, weak muscles and has an open valve in his heart. His family requested support with the cost of a summer play scheme to enable Tyler to continue to develop his independence and social skills and to prevent him from becoming isolated in the summer holidays. We were pleased to provide funding for 2 weeks at the play scheme.

Elly - dob 04/08/1999

Elly suffers with Cerebral Palsy her brother has Macrocephalous and severe Global Developmental Delay and her mother is also disabled. The family are due to move to but are waiting for adaptations to be completed on the property.Elly’s social worker contacted us to help with funding for removal costs which we were pleased to provide.

Timothy - dob 21/09/2006

Timothy was born with Hydrocephalus and has special needs. Timothy’s mother requested a grant for educational toys and school uniform. We were pleased to supply the grant.

Heidi - dob 29/02/2000

Heidi was diagnosed with Angelmans Syndrome, Autism and Epilepsy. She has highly challenging behaviour as part of her condition. She is unable to communicate verbally and has severe learning disability; she needs to have constant supervision as she drops to the ground or runs away from her parents. She often needs to be restrained to prevent her hurting herself or others.
Heidi’s social worker requested funding for a harness for the car and also a harness for when out walking. We were pleased to supply the funding for this equipment.

Oliver - dob 30/01/2008

Oliver is profoundly deaf and also has Hypermobility. Oliver has only being sleeping through the night since the age of 18mths and this was due to him having a bubble tube in his room. This is now unfortunately broken and his parents cannot afford to replace it.We were pleased to purchase a bubble tube for Oliver.

Olivia - dob 05/05/1999

Olivia has Autism and extreme behavioural issues. We were pleased to offer Olivia and her family a week’s break at our Holiday Home.

Alfie - dob 19/08/2003

Alfie has chronic renal failure secondary to juvenile nephronopthisi. He has also had a kidney transplant. Alfie was admitted into hospital as an emergency admission in April and his discharge date is unknown. Both of Alfie’s parents are unemployed as they are full time carers for  Alfie and his 3 siblings, one of whom also has health issues. We received a request from the hospital social worker for funding for hospital travel costs . We were pleased to help with a grant for the family.

Kuda - dob 03/03/1997

Kuda had chronic renal failure and had been attending a dialysis unit for the last two years. She has recently had a kidney transplant which has involved countless hospital visits. We were happy to provide funding towards the considerable costs incurred by the family for these visits.

Colchester Hospital

After discussions with Colchester Hospital we have agreed to help with the purchase of an Intensive Care MP30 Specialist Monitor for the SCBU (special care baby unit) which continuously checks the baby’s vital signs.
The advantage of these monitors is that if a child is seriously ill it can make the difference between looking after them in Colchester and transferring them to a specialist hospital.it is obviously much better for the child and their family to stay nearer to home. The more of these monitors they have the more children can be treated at Colchester.

The Matron for Children's Services at the hospital, explained: “Sick children need close observation and monitoring. These ‘Vital Signs’ monitors assist nursing and medical staff to do this, with the least amount of distress caused to the child whilst continuously monitoring the child’s progress. These monitors support the care of the seriously ill child within the Children’s Unit at Colchester General Hospital and make a real difference to the child needing this level of high dependency care. The monitors we have are in constant use and there is a need for more of them to support the care of our sickest babies and children enabling them to be nursed locally and kept here closest to their home and families."

Darcey - dob 14/3/1997

Darcey is profoundly deaf and also has mild visual impairment.
Darcey wears bilateral hearing aids and relies on sign language to communicate.She does not wear hearing aids in bed and currently relies on her mum to wake her in the morning.She would like the independence of getting herself up in the morning and so would like her own vibrating alarm clock.
We were pleased to purchase the alarm clock for Darcey.

Zviko - dob 21/3/1999

Zviko has severe Autism and highly challenging behaviour.She is doubly incontinent and also has a wide range of other health needs.
We received a request from Zviko's social worker, her mother is a single parent and her washing machine has broken down and is beyond repair.She was in desperate need to replace the washing machine to be able to manage all the extra laundry from Zviko.
We were pleased to be able to help with a grant to replace the washing machine.

Harrison - dob 10/10/2000

Harrison has a diagnosis of Downs syndrome and cardiac defect(repaired february 2001).
Harrison is a lively little boy and enjoys his freedom in the garden.
After discussions with his mother we were pleased to replace his trampoline,which due to constant use had become unsafe.We also purchased a timber built playhouse to allow Harrison to have his own space,as it is his mother's wish for him to become more independent.

Royal Manchester Children's Hospital

We were pleased to supply the Department of Therapeutic & Specialised Play at The Royal Manchester Children’s Hospital with sensory items including A Bead Bubble Tube, Water play mats & traveling lights.

Ashley - dob 9/12/1998

Ashley suffers with learning difficulties and speech and language difficulties, developmental delay,cyclical vomiting (which has needed hospital admission) and severe mobility problems.
We received a request from Ashley's social worker for a grant for a special buggy as his mother does not drive, which makes going out especially difficult.We were pleased to provide funding for the buggy.

Mid Essex Primary Care Trust

After receiving a request from Mid Essex PCT for Digital Scales we were pleased to help with the funding.

Nia - dob 29/4/2010

Nia has a complex heart condition,severe hypertrophic cardiomyopathy and is ventilator dependant on BiPAP via tracheostomy.Nia has been waiting for a heart transplant for some time.
We received a request from Nia's social worker to help her parents with daily travel costs to visit Nia in hospital.We were pleased to help with a grant.

Dominic - dob 5/4/2001

Dominic has Downs Syndrome with a congenital heart condition(which was operated on at just 3 months).Dominic has severe learning difficulties with mobility and incontinence problems.
We received a request for funding to replace the family washing machine which had stopped working and was beyond repair.As his bedding has to be washed daily we were pleased to purchase a washing machine for the family.

Abbi, Bethany, Robbie & Holly

Abbi has a diagnosis of Aspergers, Bethany has a diagnosis of Dyspraxia & ADHD and Robbie and Holly have a diagnosis of Autism. We have been pleased to help this family with new school uniform, new beds for all the children and a week’s break for all the family at our Holiday home.

Reece - dob 8/11/1999

Reece has learning disabilities,behavioural problems and epilepsy.
Reece can often present with challenging behaviour which is more apparent as he gets older.
We received a request from Reece's social worker to help with financial support to purchase a cooker. Reece's mother is a single parent and is at present finding it very hard to cope.
We were pleased to purchase a cooker for the family.

Oliver - dob 30/1/2008

Oliver is profoundly deaf and also has Hypermobility which meant he was unable to walk until recently .Oliver's social worker and parents requested funding for a sensory Bubble Tube for his bedroom.
The family had a small bubble tube (which is now broken)which they kept on all night for Oliver .Oliver wakes frequently in the night and without the bubble tube gets very upset and cannot be settled easily.We were pleased to supply the Bubble Tube.

Emel - dob 28/7/1999

Has a diagnosis of Worster Drought Syndrome. This is cerebral palsy of the mouth, tongue and swallowing muscles.
Emel’s mum requested funding for a trampoline which we were pleased to supply. We also awarded the family a week’s break at our holiday home.

Kieran - dob 22/2/2002

Kieran has severe learning difficulties and autism.We received a request from kieran's social worker for a new bed and bedding.We were pleased to be able to supply these items for Kieran.

Benjamin - dob 4/8/2003

Benjamin has Autistic Spectrum Disorder,severe learning difficulties,no speech and is double incontinent.
Ben's mother contacted us to help replace some items Ben had damaged.We were pleased to help replace carpet and laminate flooring for his bedroom (for hygiene reasons).We were also able to replace a sofa which ben had damaged and redecorate his bedroom.

Kadir - dob 9/11/1996

Kadir suffers with Treacher collins Syndrome and we were pleased to offer Kadir and his family a weeks break at our Holiday Home.

Rosemary - dob 13/2/2005

Rosemary has severe FX deficiency, muscular dystrophy and haemophilia. She had a recent hospital admission and upon discharge is to have regular out patient treatment.
The family live more than 40 miles from the hospital and are on a very low income. The hospitals Family Support Worker asked us to help towards the families considerable traveling expenses.
We were pleased to help with this request.

Demi - dob 19/2/1999

We received a request from Demi’s Social Worker for a grant for new clothes. Demi has Cystic Fibrosis and receives regular treatment at hospital. Demi has recently lost a lot of weight due to her illness and her mother passing away.
She lives with her grandmother who has full parental responsibility for both her and her sister since her mother’s death earlier this year from cancer. After discussions with her grandmother we have also agreed to fund the cost for Demi to attend her mothers memorial service in Ireland.
We have also been able to supply Demi with a laptop which was kindly donated by Specsavers in Bradford.

Faris - dob 10/3/2006

Faris has Global Developmental Delay and Hypotonia he also has vision problems and co-ordination difficulties.We were pleased to help purchase some garden toys for Faris.

Alaysha - dob 5/10/1994

Alaysha was diagnosed with a malignant brain tumour in February 2006 which has left her with a visual impairment and at present the tumour is being monitored.
We received a request for financial support towards clothing and Christmas presents from Alaysha’s Psychosocial Liaison Worker.
We were pleased to be able to help with a grant.

Joe - dob 19/3/1997

Joe has a condition called Hereditary Spastic Paraplegia, which causes weakness and stiffness of the legs.
We received a request for funding from Joe's support worker, for transport to his local disability athletics club, which he wanted to attend, she felt this would really benefit him and help to build his self-esteem.We were pleased to help with this request.

Ronnie - dob 16/12/2001

Ronnie has Cystic Fibrosis and Autism. He receives regular treatment at hospital, which involves Chest Physiotherapy to help clear excess mucus from his lungs. Other treatments he receives include antibiotics, inhaled medication and exercise that can help remove some of the secretions that are caused by his condition.
Ronnie’s Mother is a single parent and works in a very low paid job, we were asked by his hospital Family Support Worker to help towards the frequent traveling costs to and from hospital.We were pleased to be able to help with these costs.

Amy - dob 4/6/1994

Amy suffers with Cerebral Palsy,she has been in a wheelchair from the age of 4 and a power chair driver from the age of 6.She is a member of a sports group for the disabled and we were pleased to help with a grant for their prom as they expected upwards of 50 children to attend.

Alice - dob 17/1/2001

Alice has Cerebral Palsy,learning difficulties and complex health needs including hearing and visual impairments.We were pleased to help Alice with a wall mounted play board with sensory items, to be fitted at floor level, so that she can play with it from the floor or from a seat.

Charlotte - dob 15/7/2002

Charlotte was diagnosed with a malignant brain tumour and has unfortunately relapsed.She is undergoing treatment consisting of radiotherapy & chemotherapy.We were pleased to help with a grant for hospital travel costs.

Freddie - dob 29/11/2004

Freddie suffers with Cerebral palsy and Epilepsy we were pleased to offer Freddie and his family a weeks break at our Holiday Home.

Cara - dob 8/12/2009

Cara is in hospital being investigated for a rare metabolic condition and has been hospitalised since birth.Her breathing and feeding remain difficult and she requires oxygen and tube feeding.She will require a long term admission and then will have significant disability including problems with gross motor development.We were pleased to help with a grant for hospital visiting costs.

Ethan - dob 23/10/2009

Ethan was born at 24 weeks and has several complications as a consequence of his pre maturity,particularly in relation to his lung function.His prognosis is uncertain .Financial stress has taken its toll on this family as Ethan's parents have been with him since birth at four different hospitals.We were pleased to help with a grant towards travel costs.

Ellie - dob 6/5/2000

Ellie suffers with cystic Fibrosis we were pleased to offer Ellie and her family a weeks break at our Holiday Home. We were pleased to help with a grant for travel costs for Ellie's two week hospital admission and we also supplied a Nintendo DSI console and accessories to help Ellie pass the time whilst in hospital.

Eliza - dob 7/3/2010

Eliza was born 16 weeks premature and we were pleased to help the family with a grant towards hospital travel costs.

Nicholas - dob 15/12/2005

Nicholas has Autistic Spectrum Disorder and we were pleased to be able to offer Nicholas and his family a weeks break at our holiday home.

Cicely - dob 17/10/1996

Cicely has Cri Du Chat syndrome and severe learning disabilities we were pleased to offer Cicely and her family a weeks break at our Holiday Home.

Hope - dob 16/7/1998

Hope has Arrested Hydrocephalus,visual impairment,spastic Quadriplegic Cerebral Palsy,Scoliosis and severe learning difficulties.We were pleased to help Hopes family with a weeks break at our holiday home.

Ryan - dob 6/10/1994

Ryan has severe Autism and developmental delay he also has a heart condition which will require medical intervention when he is older.The family have had a sensory/calm room built for Ryan but cannot afford to equip the room.We were pleased to purchase an Interactive carpet for the room.

Mason - dob 21/3/2000

Mason has severe learning disabilities and autism.We were pleased to help the family with a weeks break at our holiday home.

Adam - dob 5/6/2009

Adam was diagnosed in February with Retinoblastoma which has caused partial blindness.We were pleased to help with a grant for travel expenses for increased hospital visits due to his condition.

Reece - dob 28/9/2000

Reece suffers with Cerebral Palsy and spends a lot of time in his wheelchair. Reece is a very happy child and loves playing with his brothers and sister and as he enjoys water we were pleased to purchase a pool and pump for the garden.

Abdul - dob 6/9/2006

Abdul was diagnosed with Retinoblastoma,a form of cancer .Unfortunately part of Abdul's treatment was to have his left eye removed which has affected his spatial awareness and he is now learning to see from just one eye.We were pleased to help with a grant for hospital travel expenses.

Lois - dob 7/12/2002

Lois has a degenerative disease GM1 gangliosidosis which is caused by a deficiency of an enzyme beta-galactosidase without it the brain accumulates fat and this causes brain damage.
We were pleased to help the family with a weeks break at our holiday home.

Ellie - dob 6/5/2000

Ellie suffers with Cystic Fibrosis. We were pleased to help with hospital admission costs for her family and a laptop for Ellie.

Tianna - dob 24/8/2009

Tianna was born at 27 weeks weighing 630 grams. We were pleased to help with funding for hospital travel costs for her parents whilst she was in the special baby care unit and child care costs for their other child. We also helped with funding for a pram, cot and other equipment for her return home. We have recently provided Tianna with a playhouse for her garden.

Jeronique - dob 16/9/2003

Jeronique suffers with Osteogenesis Imperfecta (Brittle Bone) .We were pleased to help with a specially adapted orthopedic bed, washing machine and thick rugging for her bedroom.

Rina - dob 30/3/2008

Rina was diagnosed with a malignant brain tumour and requires 18months of chemotherapy. We were pleased to help with a grant for hospital travel costs.

Charles - dob 8/1/1992

Charles has CHARGE syndrome, which affects all areas of his life. He has missed a great deal of school due to ill health and following a request from his social worker we were pleased to supply a laptop to help with his educational needs.

Chester - dob 18/7/2009

Chester suffered a brain bleed following a difficult birth, bacterial meningitis, bronchitis and pneumonia, all serious events requiring hospital admission, and now has been diagnosed with Crouzons’s Syndrome. This required major brain and skull surgery and a long term hospital stay. We were pleased to help with a grant for hospital travel costs for his parents.

Adam - dob 24/1/1993

Adam has learning difficulties, epilepsy, autism, scoliosis, lax ligaments in his feet that affect his mobility and visual impairment. We were pleased to supply a laptop to help with his educational needs.

Harry - dob 8/1/2008

Harry has Neuropathic Cystinosis and as a consequence is required to take a multitude of medications. He needs to be seen on a regular basis for the entirety of his childhood and adulthood. We were pleased to help with hospital travel costs for 12 months for Harry.

Gabriela - dob 1/10/2004

Gabriela was diagnosed with a malignant brain tumour. Due to the side effects of her treatment she has been very unwell and has put on a lot of weight. We were pleased to help with a grant for new clothes and bedding.

Bethany - dob 13/11/1996

Bethany has Lennox Gasteau Syndrome which means she has very frequent seizures. Her mother also has mobility problems have acknowledged the need for a specially adapted van but have asked the family to pay an excess of £680.The family have saved £200 and we were pleased to help with the balance.

Alice - dob 17/1/2001

Alice has Cerebral Palsy, learning disabilities and complex health needs we were pleased to help with a grant for sensory equipment.

Oliver - dob 24/3/2005

Oliver has HLH and was admitted for a bone marrow transplant in December 2009 but because he has deteriorated and been admitted to intensive care. We were pleased to help with hospital travel costs.

Leo - dob 24/5/2007

Leo was diagnosed with a rare condition called Cockayne Syndrome. This condition is life limiting and the prognosis is poor. He is totally dependant on mum for all his personal and physical care. Mum would like a sensory room and hydrotherapy pool adapted into her property and we were pleased to help with a donation towards this.

Alan - dob 27/7/2004

Alan has had a very serious gut problem over the past three years. He had an autoimmune enteropathy but did not respond to medications. After nearly two years in hospital with severe symptoms and pain he had a bone marrow transplant in May 2008.He has emerged from the transplant a much healthier child, lively, curious and wanting to get to school. Alan's father was made redundant due to the time he had to take off work and the family are now dependent on benefits. We were pleased to help with a grant for the family to enjoy some days out together now that Alan is well enough to participate.

Jerzie - dob 12/5/2008

Jerzie has a diagnosis of gastroschisis. She has been an inpatient at GOSH since birth. Jerzies long admission to GOSH has put pressure on the family both emotionally and financially. She has several siblings who also need caring for and this has therefore been a difficult time. We were pleased to help with a grant for carpet for Jerzies bedroom, as she is prone to infection.

Jayden - dob 29/1/2008

Jayden has a diagnosis of Severe Combined Immunodeficiency, which is a condition that requires a bone marrow transplant. Jayden had a long admission to GOSH and we were pleased to help the family with hospital traveling costs.

Kennedy - dob 3/10/1997

Kennedy has a diagnosis of Autistic Spectrum Disorder. He has severe learning disabilities and very complex care needs. We were pleased to help with a grant to fund 2 weeks on a play scheme for Kennedy, which will give him the opportunity to experience a wide range of activities and will also provide his mother with respite from her caring role.

Tashka - dob 22/1/1996

Tashka has Bilateral Arteriovenous Malformation, a rare vascular malformation that carries a risk of serious complications. Her condition has deteriorated, and she has been a hospital in-patient since January 2009. We were pleased to help the family with a grant for hospital traveling costs.

Ellie - dob 6/2/2000

Ellie suffers from Cystic Fibrosis and was due for a two-week admission to hospital, which was her third admission in five months. As she is one of four children, this causes the family a lot of stress and upheaval and can work out to be very expensive for them. We were pleased to help with a grant to ease this pressure.

Emma - dob 1/9/93

Emma has a condition known as Proteus Syndrome with hemi megaloencephaly and severe learning difficulties. She is profoundly disabled and suffers with very severe epilepsy. She is unable to feed herself and is dependent on special feeds through a gastrostomy, a tube into her stomach. She is wheelchair bound and not able to communicate.Emas condition is life limiting so her family requested funding to take her to Euro Disney. We were pleased to help with a grant for Emma and her family.

Calum - dob 9/12/2001

Calum has severe learning difficulties, severe growth delay, hearing loss, sight difficulties, convulsions and cardiac difficulties. He has also recently been diagnosed as epileptic. We were pleased to purchase a specialist activity centre for Calum to use at home that offers many visual and audio activities and is also designed to encourage group play.

Olutobi - dob 21/5/2005

Olutobi suffers with unexplained seizures admitted to Great Ormond Street Hospital, with funding of costs for family hospital visits provided.

Ayla - dob 22/8/2006

Ayla has an undiagnosed gut problem and was admitted to hospital for extensive investigations and treatment. We were pleased to help the family with a grant for hospital travelling costs.

Hope - dob 10/10/2005

Hope has a diagnosis of Congenital Central Hypoventilation Syndrome, which means that when she goes to sleep she requires a ventilator (BIPAP) as effectively her brain shuts down, and she does not spontaneously breathe for herself. Hope requires a lot of medication that is delivered in bulk and requires storage. We were pleased to help with the purchase of a storage unit for her medication.

Kevin - dob 10/4/1992

Admitted to hospital to have a tumour removed from behind his eye. Bone was taken from his skull and put behind the eye to stop leakage. They moved the eye back and up.We were happy to help with the costs associated with hospital admission.

Joules - dob 13/2/2007

Joules has been in hospital since birth he suffers with primary pulmonary hypertension, hypoplasia and dysplasia of the lung,embolism and thrombosis of vena cava,gastro-oesophageal reflux,patent ductus arteriosus, atrial septal defect, chronic respiratory failure,unclassified disease of bronchus and disorder of the lung. We were happy to help his family with a hospital visiting grant.

Thomas - dob 14/8/2000

Thomas has a diagnosis of Shprintzen Goldberg syndrome in addition to this he has an eating disorder he also has severe allergies,kidney problems,curved feet,underdeveloped muscles and is severely underweight. Thomas’s mother has escaped domestic violence and had to move between women’s refuges and temporary accommodation they have now been placed in permanent accommodation and we were pleased to help with funding for bedding carpets and curtains to help to make things as comfortable as possible for Thomas.

Liam - dob 2/7/1993

Liam is a boy with quadriplegia, hydrocephalus and epilepsy. We were happy to purchase a tumble form feeder seat as Liam cannot sit unsupported whilst being fed.

Alice - dob 10/12/1999

Alice has a rare and life-threatening immune condition. She underwent an emergency bone marrow transplant.We were happy to help the family with hospital visiting costs.

Joshua - dob 1/6/2001

Joshua has a condition known as Volvulus whereby the intestine is twisted and obstructs the flow of any food or drink. Joshua underwent surgery and treatment for his condition. We were pleased to help with costs associated with hospital visiting for the family.

Chloe - dob 12/6/2005

Chloe has congenital cataracts.She underwent surgery to remove the cataract and had a lens implantation. We were pleased to help with costs associated with hospital visiting for the family.

Ayla - dob 22/8/2006

Ayla was admitted to GOSH with an undiagnosed gut problem and failure to thrive. She had to have extensive investigations and treatment and they anticipated a lengthy admission.We were pleased to help with travel costs for the family for visiting.

Georgia - dob 28/4/1999

Georgia had a craniopharyngioma, which is a very rare tumour on her pituitary gland.She had surgery the day after she was diagnosed. The tumour has also led to Georgia becoming morbidly obese and although the weight is coming off now that the tumour has been operated on,she still has mobility difficulties.

We were pleased to help with a grant for carpet for her bedroom at home as the family are on a low income and the house has no carpets and Georgia needs a warm environment in order for her to respond well to her treatment.

Myriam - dob 28/11/1990

Myriam has a complex diagnosis including renovascular hypertension,aortic arch syndrome,osteonecrosis,osteoporosis and scoliosis she is currently an outpatient at GOSH and attends regular appointments. These visits are very costly to the family so we were pleased to help with travel costs.

Oliver - dob 8/2/1998

Oliver was suffering with back pain and had several MRI scans, which revealed a tumour on his spine. This was removed but the growth of the tumour has given Oliver scoliosis as it has pushed his spine out of shape. Oliver has been fitted with a back brace that has to be worn underneath his clothes. Oliver's family are on income support and cannot afford new larger clothes for him so we were asked by his social worker to help with help towards the cost of these clothes, which we were happy to do.

Tia - dob 23/2/2006

Tia has been in and out of hospital since birth.Tia does not currently have a diagnosis but has a marked muscle weakness in her arms and legs which could be due to a narrowing of the spinal cord.Her development is already severely delayed. We were pleased to help with travel costs for the family for visiting.

Elyas - dob 4/9/2006

Elyas was admitted to the Cardiac Critical Care Unit at GOSH with a diagnosis of Myocarditis an extremely severe inflammation of the heart muscle.we were happy to help with travel costs for the family for visiting.

Cicely - dob 17/10/1996

Cicely has a diagnosis of Cri du chat syndrome, severe learning disability, bilateral hip dysplasia,scoliosis and orthopaedic problems in both feet. We were happy to purchase a specially adapted trailer bike for Cicely so that she can go on bike rides with her family.

Laurie - dob 6/8/1994

Laurie has Cerebral Atrophy,Epilepsy and Global Developmental Delay she uses a wheelchair and is dependant upon others for all her care. Laurie has difficulties with toileting and has developed a pattern of soiling herself. This is a huge source of stress for the family. Lauries social worker and family requested funding for a carpet cleaner which would help to keep Laurie's room clean and hygienic. We were happy to supply the funding.

Prince - dob 26/2/2003

Prince is 5 yrs old and has been hospitalised since May 2006,sadly his condition is terminal.We were happy to help with travel costs for the family for visiting.