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Sunny Days Children's Fund |
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Example GrantsBelow is a selection of grants we have been able to make due to the wonderful help of our donors.
Callum DOB 24.11.02Callum is 10 years old and is registered blind, has quadriplegic cerebral palsy and is awaiting a gastrostomy. Callum is unable to walk or sit unaided so is constantly in his chair. He is unable to play outside as he has a tendency to be sick in the sun, so his family requested funding for a ‘summerhouse.’ This would allow him to be outside and play with his siblings but be protected from the sun at the same time. Callum’s social worker believes this would benefit him greatly enabling him to interact with his siblings in a normal living environment. We were happy to be able to help provide Callum with the Summerhouse. Tyler DOB 24.02.97Tyler has a diagnosis of Di George Syndrome and severe learning disabilities. He was born with holes in his heart and has issues with narrowing and furring of the valves. He has had 3 major heart surgeries and is likely to have more in the future. Tyler often gets frustrated when attempting to express himself. He currently uses an iPad in school and the apps that are available allow Tyler to experience a number of learning and communication opportunities from which he benefits greatly. Unfortunately his mother is a single parent and has her own health issues, she struggles to provide constant supervision for Tyler and has no expendable income to provide this vital piece of equipment herself. We received a request from Tyler’s social worker requesting funding for an iPad which she agrees would benefit him considerably. We were happy to provide Tyler with an iPad. Sohail DOB 07.12.99Sohail has a diagnosis of dyspraxia (a chronic neurological disorder) and difficulties with movement. He regularly sees a physiotherapist, podiatrist and occupational therapist for his needs and undergoes an exercise regime to promote healthy muscles. It has also been suggested that Sohail may have autism but this has not been formally diagnosed. He is struggling academically at school and despite his mother highlighting this with his teachers she has little help. Following a request we were happy to provide Sohail with a computer for to help him academically. Kyle DOB 11.11.09Kyle has a diagnosis of Cerebral Palsy Spastic Diplegia (a chronic neuromuscular condition). He is unable to walk unaided and has weakness in the trunk of his body. Kyle will be having an operation to help him walk but before surgery he needs to work on building up his trunk control otherwise the operation will not be effective. We were happy to be able to provide funding for a treadmill, as after surgery he will need 2 years of intensive physiotherapy. Charlie DOB 31.05.98
Charlie is one of twin boys who were born prematurely at 25 weeks. As a result both boys have substantial disabilities. Charlie suffered a severe stroke as a result of respiratory distress. This has left him with Hydrocephalus (fluid on the brain), left side hemiplegia (paralysis of one side) and a splint to strengthen his left leg. He also has severe visual impairment, cerebral palsy and seizures. Charlie’s hemiplegia means he is non-ambulant and non-weight bearing and relies 100% on his wheelchair for mobility needs. We were happy to provide funding towards the cost of a mobility vehicle for the family. Iwan DOB 22.11.96Iwan has a diagnosis of West Syndrome, resulting in severe epilepsy and profound multiple disabilities. He is totally dependent on others for all activities of daily living and needs constant supervision to ensure he is safe. He uses a wheelchair and is totally dependent on it and a responsible adult to get around. He spends a lot of his day in his chair and due to his disability and resulting medical needs, often presents himself as a very frustrated young man. Both his parents and social worker feel he would greatly benefit at home from the use of specialist postural chair called a P Pod. Due to his size, he also requires a mobile base in order that his parents can move him around the home to ensure he is always included as part of the family. We were happy to provide funding for these items. Columbus School
We have helped many children who attend The Columbus School on an individual basis and on this occasion we were pleased to help the school directly with funding for Sensory Light Trays. The trays are illuminated and when used in a darkened environment they enable the children to focus on the required task. They help to support those with visual impairment, autism and profound difficulties. Rebekah dob 21.10.96Rebekah has severe cerebral palsy, is epileptic, fed via tummy tube, has multiple rods in her spine and hips, regularly requires suction to help her breath and has visual impairment. We received a request for funding for an i-pad (and clamp for her wheelchair) as both Rebekah’s school and social worker believe she would greatly benefit from an i-pad as with her visual impairment she can focus better on it compared to any other visual stimulus. Also at home it will be a very positive way to interact with her family. We were happy to provide Rebekah with an i-pad and clamp. William dob - 04/04/2007
William has a diagnosis of Autism and profound global developmental delay. Unfortunately he has had a very turbulent upbringing and his maternal grandparents have now been granted a Special Guardianship Order of William. Thomas DOB 20.08.99Thomas was diagnosed with Acute Myeloid Leukaemia; this is a cancer of the myeloid line of blood cells which is fatal within a few weeks if left untreated. Thomas began a 4-6 month treatment of intensive chemotherapy which necessitates him to be an inpatient at hospital all of the time. His treatment is currently causing him significant weakness and mobility difficulties resulting in him being largely wheelchair bound. He is also suffering from repeated infections and fever leading to periods of isolation. Thomas is immunosuppressed and as a result he is unable to attend school, play with friends or spend time away from hospital. Thomas has become very bored and frustrated whilst in hospital and we happy to provide Thomas with a light weight laptop which he can use for leisure and to assist him with his schoolwork. Poppy dob -20/07/2006
Poppy has a diagnosis of Dravet Syndrome. Dravet is a life threatening epilepsy syndrome that is coupled with Autism and Ataxia. We received a request for funding for an I Pad for Poppy as children with dravet are very sensory stimulated. We were pleased to purchase the I Pad for Poppy. Anthony DOB 26.05.04Anthony has profound multiple disabilities and receives respite care at a children’s hospice. He is fully dependent for all his care needs. Anthony has been in and out of hospital for most of this year and is just beginning to show signs of his health stabilising. He is totally dependent on his wheelchair and spends a large majority of his time in it, both at home and at school. We received a request to purchase a P- Pod seat and mobile base for Anthony in order that he could be included as an integral part of the family when they are relaxing at home. We were hsppyto purchase the P-Pod and mobile base. Anthony’s family are under enormous stress as his mother who is expecting a baby imminently, has been advised, that sadly the baby has a rare genetic condition. Harley dob 04/07/2005Harley has an undiagnosed condition which started with a lump on his head, headaches and being violently sick. He was tested for a tumour and as he has a skull deformity he will be tested shortly for Greig Cephalopolysyndactyly Syndrome. Part of his treatment has been for him to have an operation to have an Intracranial Pressure Monitoring Probe fitted into his skull to measure the pressure of fluid around his brain. His Consultant Neurosurgeon was concerned with the results and has referred him to a specialist team at a hospital 140 miles from his home. The procedure is going to be repeated for a longer period of time and if it confirms their original diagnosis Harley will have to have major surgery to re-form his skull. We were pleased to be able to help with funding for travel and accommodation expenses whilst Harley is receiving his treatment. Ellie dob - 06/11/1999
Ellie has a diagnosis of Low Functioning Autism and Global Developmental Delay. She has severe sensory needs and has an obsession with her trampoline which is now unfortunately unsafe due to overuse and being 8 years old. We were pleased to purchase a new trampoline for Ellie. Benjamin dob - 11/03/09Benjamin has a diagnosis of autistic spectrum disorder. He has profound autism with difficulties with communication and social interaction. We received a request for funding from his Consultant Paediatrician for sensory equipment which will help diffuse the painful and uncomfortable situations that he encounters. We were happy to fulfil this request. Domonic dob - 05.04.2001
Dominic has a diagnosis of Downs Syndrome and a congenital heart condition. He has severe learning difficulties with mobility problems and incontinence. We were pleased to purchase a washing machine for the family after daily visits to the launderette had become difficult with Dominic and also very costly. We also helped with funding for accommodation for a weekend away for Dominic and his mother. Charlie dob - 22.12.2008
Charlie is three years old and has lots of health related problems He was admitted to hospital for intensive chest physiotherapy and has had to spend quite a long period of time as an in and out patient. We were pleased to help with a grant for hospital travel costs for the family. John dob - 19.01.1995
John has a diagnosis of Downs Syndrome, Severe Learning Difficulties and ADHD.Also both mum & dad have their own health difficulties. We were pleased to help with funding for a weekend break for the family. Joshua dob 18/02/2001Joshua was diagnosed with Acute Lymphoblastic Leukaemia (ALL), this is a cancer of the white blood cells which is fatal within weeks if left untreated. Joshua began a three year treatment of chemotherapy in March which is currently causing him significant weakness and mobility difficulties, resulting in him being generally wheelchair bound. He is also suffering from repeated infections and fever leading to frequent hospital admissions. Joshua’s condition and treatment has led to him needing help from his mum with everything. He is immunosuppressed and as a result is unable to attend school, play out with friends or spend much time out in public. Joshua’s diagnosis came just 8 months after his mum (a single parent of 4) was diagnosed with breast cancer requiring surgery, chemotherapy and radiotherapy. We were happy to provide Joshua with a lightweight laptop which he can use for leisure as well as to assist him with school work. Rhys dob - 14/12/2006
Rhys has a chromosome condition called Monosomy 13q and Microcephaly this has resulted in severely impeding Rhys’s communication abilities. Rhys has been using an i-pad at the specialist school he attends and both his family and school have reported exceptional progress with his communication. We were pleased to purchase an iPad for Rhys. Sian dob - 12/01/2004
Sian has Downs Syndrome and cannot ride a conventional bike due to her learning and physical disabilities. We received a request from her Physiotherapist for funding for a specialised tricycle which enables her to cycle with a specially adapted frame. We were pleased to purchase the tricycle for Sian. Mia dob - 06/01/2007Mia has Cerebral Palsy. Due to her also having hemiplegia Mia has decreased use and lack of sensation on the right side of her body and reduced balance and gross motor skills. As a consequence of her hemiplegia Mia has regular physiotherapy, speech therapy and hydrotherapy and has to work very hard on her daily exercise programme. Tilly dob - 23/07/2003
Tilly was born with Fetal Alcohol Syndrome, Epilepsy and severe learning difficulties. Tilly lives with her adoptive parents and attends a local hospice. We received a request for funding for an iPad which will act as a communication aid and also to be used as an education tool. We were pleased to purchase an iPad for Tilly. Darcy dob - 14/12/1995Darcy was born with a rare neurological condition called Aicardi Syndrome. Characteristics include severe developmental delay with learning disability and epilepsy. With her condition Darcy suffers with recurrent chest infections and can become dysphasic and choke, therefore she needs constant one to one attention. Darcy has no self-help skills and needs a carer to attend to all her needs. She is unable to attend the local special needs school in case she becomes unwell and therefore remains constantly in bed. Following a request from Darcy's social worker we were happy to provide her with a “P-Pod” which is a chair that has been designed and developed for disabled children when indoors or in a day care environment, it provides custom moulded support. Olivia - dob 05/05/1999
Olivia has Autism and extreme behavioural issues. We were pleased to offer Olivia and her family a week’s break at our Holiday Home. Kian dob - 10/07/2004
Kian was diagnosed with Low Functioning Autism and Profound Global Developmental Delay.Kian has exceptionally limited communication. He has started to use an iPad at the specialist school he attends which has had a very positive impact on both his school work and family life. We were pleased to purchase an iPad for Kian. Chloe dob - 19/04/1994
Chloe was diagnosed with Autism and attends a local specialist school where she has had the use of an iPad. The ipad has proved to be a very valuable communication tool which has allowed Chloe to express herself either through the use of pictures and symbols or through the typed word. We were pleased to purchase an iPad for Chloe. Ashley - dob 24/07/1996
Ashley has a lot of health needs and he has been diagnosed with Congenital Chromosomal Abnormality, Learning difficulties and Global Development Delay. Chloe dob - 19/08/1994
Chloe was born with an unexplained moderate learning difficulty and a very mild physical disability. When she was 9 however she suddenly developed severe Childhood Generalised Primary Dystonia. Within 6 months she had such severe painful muscle spasms in her legs that she lost her mobility and within 9 months the spasms in her trunk were so strong that they constantly threw her backwards so she was unable to even sit up. Robbie - 14/02/05
Robbie suffers with childhood onset dystonia. Robbie first showed signs of the condition just before his 4th birthday, and progressively has gone downhill from this time, to the extent he now uses a wheelchair 95% of the time, apart from the mobility issues in his legs, he also has extreme gross motor skills problems in his arms and back. Ryan - dob 14/04/2005
Ryan has Autism and has not had a family holiday for some time. We were therefore happy to send him and his family for a weeks break at our Holiday Home. Shannon dob - 22/11/1995 Christian has been diagnosed with Autistic Spectrum Disorder and after receiving a request from his social worker we have agreed to send Christian and his parents to our Holiday Home. Piers - dob 3/6/2003
Piers has downs syndrome and Perthes disease (a disease of the hip). Piers loves to be outdoors but cannot ride a conventional bike because the Perthes disease affects his mobility. We were happy to help with funding for a specially adapted trike, which enables him to remain mobile on his bad days. Habib - 24/06/1995
Habib has a severe form of Limb Girdle Muscular Dystrophy a progressive muscle wasting condition that is life limiting. Habib had surgery in 2009 to straighten his spine. Unfortunately he misses a lot of school due to his condition, so we agreed to purchase a laptop to enable him to keep up with his school work Daniel - dob 08/08/2003
Daniel has a severe heart defect and has had two major surgeries on bypass to give him a ‘fontan circulation’. Since he has only one ventricle in his heart his blood circulation now goes around his body and through his lungs. He has been put on warfarin for life (to thin his blood) so it can glide past the scar tissue. Abigail dob 05/06/2003 Abigail has been diagnosed with chromosome abnormality 2, feet abnormalities (Forefoot Adductus and locked ankles) causing problems with her balance and mobility, Factor 5 Leiden Clotting Deficiency (blood has increased tendency to clot), reflux nephropathy (kidney condition causing urine to go back to the bladder instead of through the kidneys) and learning difficulties. Abigail is a wheelchair user. Christian - dob 03/10/1995 Christian has been diagnosed with Autistic Spectrum Disorder and after receiving a request from his social worker we have agreed to send Christian and his parents to our Holiday Home. Gabriella - dob 10/03/2008Gabriella has a diagnosis of Gastroschisis and short gut syndrome. She has complex medical needs and has had 92% of her bowel removed. Due to her condition Gabriella suffers with constant diarrhoea and she requires changing between 5 to 8 times a night, including full change of bed clothes and bedding. Gabriella’s parents are under a lot of financial strain to maintain the volume of continence supplies and her social worker has requested a grant for specialist all in one vests and a Hammond Hickman Line wet/dry suit to enable her parents to take her swimming. We were pleased to supply the funding for these items. Mohammed - dob 07/04/2008Mohammed has SCID (severe combined immunodeficiency disease).He was admitted to hospital 19.02.11 as a planned admission but his expected discharge date is not known. We were approached by the family social worker to supply a grant for hospital travel costs we were pleased to help with this grant. Dean - dob 26/03/1994Dean has a diagnosis of Worster Drought Syndrome. This is a type of cerebral palsy which predominantly affects the control of the muscles which move the lips, tongue and palate, pharynx, oesophagus and vocal cords. Dean is unable to speak at all. Brodie - dob 04/09/01Brodie has complex medical needs related to her gut and endocrine system and requires specialized medical care and future surgery. Brodie has been admitted to hospital and her expected discharge date is not known. We were pleased to supply a hospital travel grant to her family. Norman - dob 16/09/1994
Norman has a diagnosis of severe epilepsy in the form of Lennox Gastaut Syndrome and autism. Norman is home educated due to his complex seizure disorder, recurrent poor health and sleep disorder which made attending school very difficult. We were pleased to supply a touch screen computer for Norman to help with his education. Connor - dob 03/09/1995Connor has a diagnosis of Autism and presents with challenging behaviour which can be unpredictable at times therefore requires carer’s to be vigilant and alert to this. School holidays can be particularly difficult to manage for his parents as Connor is restricted to the home as they find it difficult to take him out due to the risks he presents to himself and others. We have therefore agreed to fund a two week play scheme for Connor in the school holidays. Dylan - dob 19/01/1998Dylan has autism which affects his verbal communication. He has no sense of danger and experiences bowel problems. Due to Dylan’s condition, the family’s current housing area environment is stressful in terms of Dylan and his 3 younger siblings and his parents being verbally targeted by a neighbour. The family are actively pursuing alternative accommodation as they are subjected to verbal abuse on a regular basis making it impossible to spend time in the garden. We have agreed with his social worker that Dylan would greatly benefit from a holiday with his family away from this situation. We were pleased to supply a holiday grant for Dylan and his family. Erin - dob 22/05/2008Erin has Down syndrome and hearing impairment. Erin is just beginning to walk and her parents want to convert their garden to give Erin a safe & secure place to play. We have agreed to help with funding towards a ‘safe surface’ to be installed in their garden. George - dob 14/12/2009George has severe reflux and is under investigation for Gastro. He has had several admissions to hospital since birth as his condition is very rare and they are still trying to find out the best possible long term care/treatment for him. George’s family are under a great amount of stress both personally and financially, we have therefore agreed after a request from his social worker to provide a grant for travel costs. Tyler - dob 11/06/1997Tyler has a diagnosis of severe congenital Myotonic Dystrophy he has severe learning difficulties, weak muscles and has an open valve in his heart. His family requested support with the cost of a summer play scheme to enable Tyler to continue to develop his independence and social skills and to prevent him from becoming isolated in the summer holidays. We were pleased to provide funding for 2 weeks at the play scheme. Elly - dob 04/08/1999Elly suffers with Cerebral Palsy her brother has Macrocephalous and severe Global Developmental Delay and her mother is also disabled. The family are due to move to but are waiting for adaptations to be completed on the property.Elly’s social worker contacted us to help with funding for removal costs which we were pleased to provide. Timothy - dob 21/09/2006Timothy was born with Hydrocephalus and has special needs. Timothy’s mother requested a grant for educational toys and school uniform. We were pleased to supply the grant. Heidi - dob 29/02/2000 Heidi was diagnosed with Angelmans Syndrome, Autism and Epilepsy. She has highly challenging behaviour as part of her condition. She is unable to communicate verbally and has severe learning disability; she needs to have constant supervision as she drops to the ground or runs away from her parents. She often needs to be restrained to prevent her hurting herself or others. Oliver - dob 30/01/2008Oliver is profoundly deaf and also has Hypermobility. Oliver has only being sleeping through the night since the age of 18mths and this was due to him having a bubble tube in his room. This is now unfortunately broken and his parents cannot afford to replace it.We were pleased to purchase a bubble tube for Oliver. Alfie - dob 19/08/2003Alfie has chronic renal failure secondary to juvenile nephronopthisi. He has also had a kidney transplant. Alfie was admitted into hospital as an emergency admission in April and his discharge date is unknown. Both of Alfie’s parents are unemployed as they are full time carers for Alfie and his 3 siblings, one of whom also has health issues. We received a request from the hospital social worker for funding for hospital travel costs . We were pleased to help with a grant for the family.
Kuda had chronic renal failure and had been attending a dialysis unit for the last two years. She has recently had a kidney transplant which has involved countless hospital visits. We were happy to provide funding towards the considerable costs incurred by the family for these visits. Colchester Hospital
After discussions with Colchester Hospital we have agreed to help with the purchase of an Intensive Care MP30 Specialist Monitor for the SCBU (special care baby unit) which continuously checks the baby’s vital signs. The Matron for Children's Services at the hospital, explained: “Sick children need close observation and monitoring. These ‘Vital Signs’ monitors assist nursing and medical staff to do this, with the least amount of distress caused to the child whilst continuously monitoring the child’s progress. These monitors support the care of the seriously ill child within the Children’s Unit at Colchester General Hospital and make a real difference to the child needing this level of high dependency care. The monitors we have are in constant use and there is a need for more of them to support the care of our sickest babies and children enabling them to be nursed locally and kept here closest to their home and families." Darcey - dob 14/3/1997Darcey is profoundly deaf and also has mild visual impairment. Zviko - dob 21/3/1999Zviko has severe Autism and highly challenging behaviour.She is doubly incontinent and also has a wide range of other health needs. Harrison - dob 10/10/2000
Harrison has a diagnosis of Downs syndrome and cardiac defect(repaired february 2001). Royal Manchester Children's Hospital
We were pleased to supply the Department of Therapeutic & Specialised Play at The Royal Manchester Children’s Hospital with sensory items including A Bead Bubble Tube, Water play mats & traveling lights. Ashley - dob 9/12/1998Ashley suffers with learning difficulties and speech and language difficulties, developmental delay,cyclical vomiting (which has needed hospital admission) and severe mobility problems. Mid Essex Primary Care Trust
After receiving a request from Mid Essex PCT for Digital Scales we were pleased to help with the funding. Nia - dob 29/4/2010Nia has a complex heart condition,severe hypertrophic cardiomyopathy and is ventilator dependant on BiPAP via tracheostomy.Nia has been waiting for a heart transplant for some time. Dominic - dob 5/4/2001Dominic has Downs Syndrome with a congenital heart condition(which was operated on at just 3 months).Dominic has severe learning difficulties with mobility and incontinence problems. Abbi, Bethany, Robbie & Holly
Abbi has a diagnosis of Aspergers, Bethany has a diagnosis of Dyspraxia & ADHD and Robbie and Holly have a diagnosis of Autism. We have been pleased to help this family with new school uniform, new beds for all the children and a week’s break for all the family at our Holiday home. Reece - dob 8/11/1999Reece has learning disabilities,behavioural problems and epilepsy. Oliver - dob 30/1/2008Oliver is profoundly deaf and also has Hypermobility which meant he was unable to walk until recently .Oliver's social worker and parents requested funding for a sensory Bubble Tube for his bedroom. Emel - dob 28/7/1999
Has a diagnosis of Worster Drought Syndrome. This is cerebral palsy of the mouth, tongue and swallowing muscles. Kieran - dob 22/2/2002Kieran has severe learning difficulties and autism.We received a request from kieran's social worker for a new bed and bedding.We were pleased to be able to supply these items for Kieran. Benjamin - dob 4/8/2003Benjamin has Autistic Spectrum Disorder,severe learning difficulties,no speech and is double incontinent. Kadir - dob 9/11/1996Kadir suffers with Treacher collins Syndrome and we were pleased to offer Kadir and his family a weeks break at our Holiday Home. Rosemary - dob 13/2/2005Rosemary has severe FX deficiency, muscular dystrophy and haemophilia. She had a recent hospital admission and upon discharge is to have regular out patient treatment. Demi - dob 19/2/1999
We received a request from Demi’s Social Worker for a grant for new clothes. Demi has Cystic Fibrosis and receives regular treatment at hospital. Demi has recently lost a lot of weight due to her illness and her mother passing away. Faris - dob 10/3/2006Faris has Global Developmental Delay and Hypotonia he also has vision problems and co-ordination difficulties.We were pleased to help purchase some garden toys for Faris. Alaysha - dob 5/10/1994Alaysha was diagnosed with a malignant brain tumour in February 2006 which has left her with a visual impairment and at present the tumour is being monitored. Joe - dob 19/3/1997 Joe has a condition called Hereditary Spastic Paraplegia, which causes weakness and stiffness of the legs. Ronnie - dob 16/12/2001Ronnie has Cystic Fibrosis and Autism. He receives regular treatment at hospital, which involves Chest Physiotherapy to help clear excess mucus from his lungs. Other treatments he receives include antibiotics, inhaled medication and exercise that can help remove some of the secretions that are caused by his condition. Amy - dob 4/6/1994
Amy suffers with Cerebral Palsy,she has been in a wheelchair from the age of 4 and a power chair driver from the age of 6.She is a member of a sports group for the disabled and we were pleased to help with a grant for their prom as they expected upwards of 50 children to attend. Alice - dob 17/1/2001
Alice has Cerebral Palsy,learning difficulties and complex health needs including hearing and visual impairments.We were pleased to help Alice with a wall mounted play board with sensory items, to be fitted at floor level, so that she can play with it from the floor or from a seat. Charlotte - dob 15/7/2002Charlotte was diagnosed with a malignant brain tumour and has unfortunately relapsed.She is undergoing treatment consisting of radiotherapy & chemotherapy.We were pleased to help with a grant for hospital travel costs. Freddie - dob 29/11/2004Freddie suffers with Cerebral palsy and Epilepsy we were pleased to offer Freddie and his family a weeks break at our Holiday Home. Cara - dob 8/12/2009Cara is in hospital being investigated for a rare metabolic condition and has been hospitalised since birth.Her breathing and feeding remain difficult and she requires oxygen and tube feeding.She will require a long term admission and then will have significant disability including problems with gross motor development.We were pleased to help with a grant for hospital visiting costs. Ethan - dob 23/10/2009Ethan was born at 24 weeks and has several complications as a consequence of his pre maturity,particularly in relation to his lung function.His prognosis is uncertain .Financial stress has taken its toll on this family as Ethan's parents have been with him since birth at four different hospitals.We were pleased to help with a grant towards travel costs. Ellie - dob 6/5/2000
Ellie suffers with cystic Fibrosis we were pleased to offer Ellie and her family a weeks break at our Holiday Home. We were pleased to help with a grant for travel costs for Ellie's two week hospital admission and we also supplied a Nintendo DSI console and accessories to help Ellie pass the time whilst in hospital. Eliza - dob 7/3/2010Eliza was born 16 weeks premature and we were pleased to help the family with a grant towards hospital travel costs. Nicholas - dob 15/12/2005Nicholas has Autistic Spectrum Disorder and we were pleased to be able to offer Nicholas and his family a weeks break at our holiday home. Cicely - dob 17/10/1996Cicely has Cri Du Chat syndrome and severe learning disabilities we were pleased to offer Cicely and her family a weeks break at our Holiday Home. Hope - dob 16/7/1998Hope has Arrested Hydrocephalus,visual impairment,spastic Quadriplegic Cerebral Palsy,Scoliosis and severe learning difficulties.We were pleased to help Hopes family with a weeks break at our holiday home. Ryan - dob 6/10/1994Ryan has severe Autism and developmental delay he also has a heart condition which will require medical intervention when he is older.The family have had a sensory/calm room built for Ryan but cannot afford to equip the room.We were pleased to purchase an Interactive carpet for the room. Mason - dob 21/3/2000Mason has severe learning disabilities and autism.We were pleased to help the family with a weeks break at our holiday home. Adam - dob 5/6/2009Adam was diagnosed in February with Retinoblastoma which has caused partial blindness.We were pleased to help with a grant for travel expenses for increased hospital visits due to his condition. Reece - dob 28/9/2000Reece suffers with Cerebral Palsy and spends a lot of time in his wheelchair. Reece is a very happy child and loves playing with his brothers and sister and as he enjoys water we were pleased to purchase a pool and pump for the garden. Abdul - dob 6/9/2006Abdul was diagnosed with Retinoblastoma,a form of cancer .Unfortunately part of Abdul's treatment was to have his left eye removed which has affected his spatial awareness and he is now learning to see from just one eye.We were pleased to help with a grant for hospital travel expenses. Lois - dob 7/12/2002Lois has a degenerative disease GM1 gangliosidosis which is caused by a deficiency of an enzyme beta-galactosidase without it the brain accumulates fat and this causes brain damage. Ellie - dob 6/5/2000Ellie suffers with Cystic Fibrosis. We were pleased to help with hospital admission costs for her family and a laptop for Ellie. Tianna - dob 24/8/2009
Tianna was born at 27 weeks weighing 630 grams. We were pleased to help with funding for hospital travel costs for her parents whilst she was in the special baby care unit and child care costs for their other child. We also helped with funding for a pram, cot and other equipment for her return home. We have recently provided Tianna with a playhouse for her garden. Jeronique - dob 16/9/2003Jeronique suffers with Osteogenesis Imperfecta (Brittle Bone) .We were pleased to help with a specially adapted orthopedic bed, washing machine and thick rugging for her bedroom. Rina - dob 30/3/2008Rina was diagnosed with a malignant brain tumour and requires 18months of chemotherapy. We were pleased to help with a grant for hospital travel costs. Charles - dob 8/1/1992Charles has CHARGE syndrome, which affects all areas of his life. He has missed a great deal of school due to ill health and following a request from his social worker we were pleased to supply a laptop to help with his educational needs. Chester - dob 18/7/2009Chester suffered a brain bleed following a difficult birth, bacterial meningitis, bronchitis and pneumonia, all serious events requiring hospital admission, and now has been diagnosed with Crouzons’s Syndrome. This required major brain and skull surgery and a long term hospital stay. We were pleased to help with a grant for hospital travel costs for his parents. Adam - dob 24/1/1993Adam has learning difficulties, epilepsy, autism, scoliosis, lax ligaments in his feet that affect his mobility and visual impairment. We were pleased to supply a laptop to help with his educational needs. Harry - dob 8/1/2008
Harry has Neuropathic Cystinosis and as a consequence is required to take a multitude of medications. He needs to be seen on a regular basis for the entirety of his childhood and adulthood. We were pleased to help with hospital travel costs for 12 months for Harry. Gabriela - dob 1/10/2004Gabriela was diagnosed with a malignant brain tumour. Due to the side effects of her treatment she has been very unwell and has put on a lot of weight. We were pleased to help with a grant for new clothes and bedding. Bethany - dob 13/11/1996Bethany has Lennox Gasteau Syndrome which means she has very frequent seizures. Her mother also has mobility problems have acknowledged the need for a specially adapted van but have asked the family to pay an excess of £680.The family have saved £200 and we were pleased to help with the balance. Alice - dob 17/1/2001Alice has Cerebral Palsy, learning disabilities and complex health needs we were pleased to help with a grant for sensory equipment. Oliver - dob 24/3/2005Oliver has HLH and was admitted for a bone marrow transplant in December 2009 but because he has deteriorated and been admitted to intensive care. We were pleased to help with hospital travel costs. Leo - dob 24/5/2007Leo was diagnosed with a rare condition called Cockayne Syndrome. This condition is life limiting and the prognosis is poor. He is totally dependant on mum for all his personal and physical care. Mum would like a sensory room and hydrotherapy pool adapted into her property and we were pleased to help with a donation towards this. Alan - dob 27/7/2004Alan has had a very serious gut problem over the past three years. He had an autoimmune enteropathy but did not respond to medications. After nearly two years in hospital with severe symptoms and pain he had a bone marrow transplant in May 2008.He has emerged from the transplant a much healthier child, lively, curious and wanting to get to school. Alan's father was made redundant due to the time he had to take off work and the family are now dependent on benefits. We were pleased to help with a grant for the family to enjoy some days out together now that Alan is well enough to participate. Jerzie - dob 12/5/2008Jerzie has a diagnosis of gastroschisis. She has been an inpatient at GOSH since birth. Jerzies long admission to GOSH has put pressure on the family both emotionally and financially. She has several siblings who also need caring for and this has therefore been a difficult time. We were pleased to help with a grant for carpet for Jerzies bedroom, as she is prone to infection. Jayden - dob 29/1/2008Jayden has a diagnosis of Severe Combined Immunodeficiency, which is a condition that requires a bone marrow transplant. Jayden had a long admission to GOSH and we were pleased to help the family with hospital traveling costs. Kennedy - dob 3/10/1997Kennedy has a diagnosis of Autistic Spectrum Disorder. He has severe learning disabilities and very complex care needs. We were pleased to help with a grant to fund 2 weeks on a play scheme for Kennedy, which will give him the opportunity to experience a wide range of activities and will also provide his mother with respite from her caring role. Tashka - dob 22/1/1996Tashka has Bilateral Arteriovenous Malformation, a rare vascular malformation that carries a risk of serious complications. Her condition has deteriorated, and she has been a hospital in-patient since January 2009. We were pleased to help the family with a grant for hospital traveling costs. Ellie - dob 6/2/2000Ellie suffers from Cystic Fibrosis and was due for a two-week admission to hospital, which was her third admission in five months. As she is one of four children, this causes the family a lot of stress and upheaval and can work out to be very expensive for them. We were pleased to help with a grant to ease this pressure. Emma - dob 1/9/93
Emma has a condition known as Proteus Syndrome with hemi megaloencephaly and severe learning difficulties. She is profoundly disabled and suffers with very severe epilepsy. She is unable to feed herself and is dependent on special feeds through a gastrostomy, a tube into her stomach. She is wheelchair bound and not able to communicate.Emas condition is life limiting so her family requested funding to take her to Euro Disney. We were pleased to help with a grant for Emma and her family. Calum - dob 9/12/2001Calum has severe learning difficulties, severe growth delay, hearing loss, sight difficulties, convulsions and cardiac difficulties. He has also recently been diagnosed as epileptic. We were pleased to purchase a specialist activity centre for Calum to use at home that offers many visual and audio activities and is also designed to encourage group play. Olutobi - dob 21/5/2005Olutobi suffers with unexplained seizures admitted to Great Ormond Street Hospital, with funding of costs for family hospital visits provided. Ayla - dob 22/8/2006Ayla has an undiagnosed gut problem and was admitted to hospital for extensive investigations and treatment. We were pleased to help the family with a grant for hospital travelling costs. Hope - dob 10/10/2005Hope has a diagnosis of Congenital Central Hypoventilation Syndrome, which means that when she goes to sleep she requires a ventilator (BIPAP) as effectively her brain shuts down, and she does not spontaneously breathe for herself. Hope requires a lot of medication that is delivered in bulk and requires storage. We were pleased to help with the purchase of a storage unit for her medication. Kevin - dob 10/4/1992Admitted to hospital to have a tumour removed from behind his eye. Bone was taken from his skull and put behind the eye to stop leakage. They moved the eye back and up.We were happy to help with the costs associated with hospital admission. Joules - dob 13/2/2007Joules has been in hospital since birth he suffers with primary pulmonary hypertension, hypoplasia and dysplasia of the lung,embolism and thrombosis of vena cava,gastro-oesophageal reflux,patent ductus arteriosus, atrial septal defect, chronic respiratory failure,unclassified disease of bronchus and disorder of the lung. We were happy to help his family with a hospital visiting grant. Thomas - dob 14/8/2000Thomas has a diagnosis of Shprintzen Goldberg syndrome in addition to this he has an eating disorder he also has severe allergies,kidney problems,curved feet,underdeveloped muscles and is severely underweight. Thomas’s mother has escaped domestic violence and had to move between women’s refuges and temporary accommodation they have now been placed in permanent accommodation and we were pleased to help with funding for bedding carpets and curtains to help to make things as comfortable as possible for Thomas. Liam - dob 2/7/1993Liam is a boy with quadriplegia, hydrocephalus and epilepsy. We were happy to purchase a tumble form feeder seat as Liam cannot sit unsupported whilst being fed. Alice - dob 10/12/1999Alice has a rare and life-threatening immune condition. She underwent an emergency bone marrow transplant.We were happy to help the family with hospital visiting costs. Joshua - dob 1/6/2001Joshua has a condition known as Volvulus whereby the intestine is twisted and obstructs the flow of any food or drink. Joshua underwent surgery and treatment for his condition. We were pleased to help with costs associated with hospital visiting for the family. Chloe - dob 12/6/2005Chloe has congenital cataracts.She underwent surgery to remove the cataract and had a lens implantation. We were pleased to help with costs associated with hospital visiting for the family. Ayla - dob 22/8/2006Ayla was admitted to GOSH with an undiagnosed gut problem and failure to thrive. She had to have extensive investigations and treatment and they anticipated a lengthy admission.We were pleased to help with travel costs for the family for visiting. Georgia - dob 28/4/1999Georgia had a craniopharyngioma, which is a very rare tumour on her pituitary gland.She had surgery the day after she was diagnosed. The tumour has also led to Georgia becoming morbidly obese and although the weight is coming off now that the tumour has been operated on,she still has mobility difficulties. Myriam - dob 28/11/1990Myriam has a complex diagnosis including renovascular hypertension,aortic arch syndrome,osteonecrosis,osteoporosis and scoliosis she is currently an outpatient at GOSH and attends regular appointments. These visits are very costly to the family so we were pleased to help with travel costs. Oliver - dob 8/2/1998Oliver was suffering with back pain and had several MRI scans, which revealed a tumour on his spine. This was removed but the growth of the tumour has given Oliver scoliosis as it has pushed his spine out of shape. Oliver has been fitted with a back brace that has to be worn underneath his clothes. Oliver's family are on income support and cannot afford new larger clothes for him so we were asked by his social worker to help with help towards the cost of these clothes, which we were happy to do. Tia - dob 23/2/2006Tia has been in and out of hospital since birth.Tia does not currently have a diagnosis but has a marked muscle weakness in her arms and legs which could be due to a narrowing of the spinal cord.Her development is already severely delayed. We were pleased to help with travel costs for the family for visiting. Elyas - dob 4/9/2006Elyas was admitted to the Cardiac Critical Care Unit at GOSH with a diagnosis of Myocarditis an extremely severe inflammation of the heart muscle.we were happy to help with travel costs for the family for visiting. Cicely - dob 17/10/1996Cicely has a diagnosis of Cri du chat syndrome, severe learning disability, bilateral hip dysplasia,scoliosis and orthopaedic problems in both feet. We were happy to purchase a specially adapted trailer bike for Cicely so that she can go on bike rides with her family. Laurie - dob 6/8/1994Laurie has Cerebral Atrophy,Epilepsy and Global Developmental Delay she uses a wheelchair and is dependant upon others for all her care. Laurie has difficulties with toileting and has developed a pattern of soiling herself. This is a huge source of stress for the family. Lauries social worker and family requested funding for a carpet cleaner which would help to keep Laurie's room clean and hygienic. We were happy to supply the funding. Prince - dob 26/2/2003Prince is 5 yrs old and has been hospitalised since May 2006,sadly his condition is terminal.We were happy to help with travel costs for the family for visiting.
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